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Are you attending AcademyHealth's Annual Research Meeting (ARM) on June 23 - June 25? We've highlighted sessions featuring EDM Forum investigators and colleagues for you to attend. Check them out below and mark your calendar for these important sessions! Sunday, June 23 Patient and Stakeholder Engagement for Patient Centered Outcomes Research Marianne Hamilton Lopez, AcademyHealth (chair); Jeffrey Chan, Tufts Medical Center; Andrew Gawron, Northwestern University Feinberg School of Medicine; Rachel Kimberling, Department of Veterans Affairs, Palo Alto; John Magi, Beth Israel Deaconess Medical Center; Aasta Thielke, Oregon Health ...
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The EDM Forum is proud to announce the official launch of our new peer-reviewed epublication, eGEMs (Generating Evidence and Methods to improve patient outcomes) . eGEMs is a new way to rapidly publish and disseminate thoughtful approaches to using electronic clinical data (ECD) (e.g. electronic health records) for research and quality improvement (QI). As adoption and utilization of health information technology (HIT) increases, eGEMs will help facilitate exchange of new innovations and methods that have been developed to support the goals of a learning health system. eGEMs provides a credible and timely way for researchers and ...
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As electronic health records (EHRs) are implemented nationwide, their ability (or inability) to share electronic clinical data (ECD) has come under scrutiny because of the slow progress in achieving “interoperability”, which can be thought of as the ability of different systems to “talk” to one another and exchange information across different formats and technology. Though the primary objective of data exchange between EHRs is to improve the continuity of patient care, the re-use of ECD for comparative effectiveness research (CER) , patient centered outcomes research (PCOR), and quality improvement (QI) is an important step to achieving the level of discovery, ...
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Last week the American Medical Informatics Association (AMIA) held its 2012 Annual Symposium in Chicago, IL. The theme of the meeting was ‘Informatics: Transforming Health and Healthcare,’ a relevant topic for the projects in the EDM Forum that are building infrastructure and using informatics to bridge information and evidence gaps to develop a learning health system and improve patient outcomes. Throughout the sessions, the idea that the science of informatics is rapidly transforming the way health care is delivered and how information can be used more effectively led to an underlying theme: the new directions for informatics will require collaboration ...
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On Wednesday, October 31 st the EDM forum hosted a webinar entitled “Clinical Informatics, CER, and PCOR: Building Blocks for Meaningful Use of Big Data in Health Care.” AcademyHealth’s Erin Holve, who is the PI of the EDM Forum, provided a welcome, overview of the EDM Forum, and introduction of speakers. The session featured four presenters – Marianne Hamilton Lopez (AcademyHealth), Dean Sittig (University of Texas Health Sciences Center at Houston), Michael Kahn (University of Colorado, Denver), and Adam Wilcox (Columbia University) – who discussed how electronic clinical data could be best utilized for conducting research to improve the quality of care. ...
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While the expansion of EHRs has potential to improve the quality of healthcare in the United States, there are a number of existing obstacles that may hinder its progress. One of these barriers is the lack of a coherent governance policy. The EDM Forum defines governance as “the policies and procedures that oversee data stewardship and management of data linkage, aggregation, storage, acquisition, and use of data.” The American Health Information Management Association (AHIMA) recently released a statement calling for “improved and unified Health Information Governance to standardize Electronic Health Record (EHR) use to ensure the technology ...
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Last week, Health Affairs held a briefing to unveil its October 2012 issue: “ Current Challenges in Comparative Effectiveness Research .” The papers presented from the issue examine how and to whom findings from CER should be communicated to ensure that evidence is used accurately and has the most impact on improving clinical care and patient outcomes (comments about the full issue are available in a recent post on AcademyHealth’s blog ). Most intriguing is the approach the issue took to provide such an analysis. The authors represented various perspectives (including, academic, legal, industry, patients/consumers, policy and government) on a hypothetical ...
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To get the latest on current efforts using electronic health data for CER, PCOR, and QI you've come to the right place— www.edm-forum.org is the go-to hub for information on projects and eHealth initiatives that are building innovative tools and systems to use electronic health data to improve patient outcomes. A variety of resources are available for learning about the PROSPECT, DRN, and Enhanced Registry projects and related efforts through our briefs, reports, and resources. Need to refresh your electronic data methods vocabulary? Check out the acronym list and wiki-glossary to stay up-to-date on the latest terms, initiatives, and concepts in this ...
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On September 6, the Institute of Medicine (IOM) released a new report , entitled “Best Care at Lower Cost: The Path to Continuously Learning Health Care in America”, that laid out a road map for addressing the issues of cost and quality in the US health care system. The report describes the importance of transforming the US health care system into a “continuously learning” system that promotes a culture of improvement. Expanding the volume of accessible clinical data for comparative effective research (CER), patient-centered outcomes research (PCOR), and quality improvement (QI) is an important step toward achieving this vision. The committee report ...
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Taken together, the papers presented at the June, 2012 meeting of the EDM Forum demonstrated the great potential of using data gathered for patient care for patient-centered outcomes research (PCOR). This is important because these data are increasingly in electronic form, and, in electronic systems, many more patients are now available for study than are available in the typical clinical trial. The large number of patients in these systems is, in turn, critical to generate the large samples that are needed to study rare diseases and adverse medication effects. As Paul Wallace noted on the closing panel, such large numbers are critical in order to move from evidence-based ...
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Earlier this week, the Journal of the American Medical Association (JAMA) released a themed issue on comparative effectiveness research (CER). In addition to research reports on CER studies that used observational research methods, the issue includes several viewpoint articles related to PCORI’s current and future activities, patient engagement in research, and how clinicians and policymakers might use the evidence generated by CER. Of particular interest to the EDM Forum Community, in the “Special Communication” section of the issue, PCORI’s methodology committee discusses its charge to develop methodological standards for patient-centered outcomes ...
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AcademyHealth’s Electronic Data Methods (EDM) Forum is pleased to release Building the Electronic Clinical Data Infrastructure to Improve Patient Outcomes: CER Project Profiles . This report provides a background and profiles of 12 research projects supported by the Agency for Healthcare Research and Quality (AHRQ) that focus on developing innovative approaches to use electronic clinical data for comparative effectiveness research (CER) and patient-centered outcomes research (PCOR). The profiles provide information for each of the eleven projects within the Prospective Outcome Systems using Patient-specific Electronic data to Compare Tests ...
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